The International FOXP1 conference was held on June 19 and 20 in the Leonardo Hotel in Ijmuiden, organized by Stichting Kind Beter and the International FOXP1 Foundation. The event welcomed more than 200 attendees from around the globe, including 75 families, 30 researchers, 49 individuals with FOXP1 syndrome, and more than 30 siblings, for […]
Willeke and Bas went to the AD/PD2024 conference in Lisbon starting on March 5th. This conference aims to share novel insights into the disease mechanisms and therapeutic innovations in Alzheimer’s Disease and Parkinson’s Disease. The first day was kicked off with a fireside chat with Michael J. Fox, who shared his experiences on living with […]
Great news! The CureQ consortium has been granted by the NWO (Dutch Research Council) and started this month. The CureQ program focusses on a distinct group of dominantly inherited neurodegenerative disorders caused by a CAG repeat expansion within the relevant genes, including Huntington’s disease (HD) and various spinocerebellar ataxias (SCA). Over 5.5 million euro will […]
On Monday 3 October, the kick-off of our CureQ consortium was held: an introduction of all those involved who will work together over the next 5 years on predicting, delaying and curing the hereditary polyglutamine brain diseases Huntington, SCA1 and SCA3 (www.cureQ.nl). Researchers and neurologists from various Dutch universities, various HBO courses, ethicists, biotechnology companies, […]
As of 1 October, our group head, Willeke van Roon-Mom, has been appointed as Leiden professor of Human Genetics, in particular of neurodegenerative disorders! So we now have a real Professor in our group. “My entire scientific career I have been working on hereditary brain disorders that are caused by problems. Together with colleagues, I […]
Willeke tells in this (Dutch) video about the impact that the corona crisis has on our group, since most of us are working from home now. And what to do when we can start up the lab work again?